Wes has learned some new words. Love to listen to that sweet little voice even when he is telling me no and move. His little way of telling the nurses, doctors, momma, and daddy what he wants. He is has also learned to say Elmo and pee pee. Past two days have been filled with Elmo music dvd. He wakes up, pointing to the tv saying "melmo". Does his little bounce dance in the bed.

Life can be so unpredictable...we move one step forward, yes only to take two back. Wes breathing has improved considerably with no desats. Today things seemed to be looking up! Wes will be discharged tomorrow and after a few frustrating calls and $475 fees per flight to get home, I finally found a friendly woman with Delta who was wiling to really listen to our situation. She waived the fee with contact of a medical case manager here.

The steps back, Wes is still vomiting and now having considerably less urine output. Only two wet diapers all day and Wes has gone through every little pink gown on the 6th floor. I worry leaving the hospital with him vomiting the way he has been. The doctors have all assured us that this too will pass with time and patience. Initially we were told this would be a simple surgery and Wes would bounce back quickly, which makes me question why this is not happening. There is no true explanation, which of course I hate. I need answers and resolutions, when it involves my baby. What can I do for him...hate to see him suffer through, yet another difficult time.

Spreading some of that universal charm...a smile and personality that grabs your heart!