Wes was moved last night to a step down from the PICU. Constant care unit is basically six beds divided by curtains. All neuro patients, which is better for Wes. Last night they also removed his arterial line and catheter.
He is doing better since Dr. Bowman came into the ICU and laid down the law on his pain meds. Pain is still an issue, but better.
He is being fed with an oral gastric (OG) tube. He is finally getting some pediasure, but is not real happy with this tube and has tried to maneuver it out with his tongue. With his palate open there was just too much communication. This will remain for about two weeks.
His little eyes are swollen badly. Both have been swollen completely closed. His arms are in no-nos to keep him from pulling out the OG tube. This keeps his arms straight, but he still manages to let me know, he wants to be held. Reaches up and clinches his little fist. It is a difficult task with the swelling and wires, which have lessened in the past day. Even lying in my lap, he does not want to be touched or any type of movement. Want be long and he will be running from anyone in white coat or wearing those latex gloves!
Yesterday Dr. Bowman proudly showed me his CT scans. Both of his encephaloceles are covered with the bone graft from the top of his head, just a bit larger soft spot. His surgery was perfect!!!
Recovery will take time, but he is such a strong little fellow!