Wes' surgery was confirmed today for August 3rd by the ENT. When I called again last week for confirmation from the neurosurgeon, I discovered she and her nurse were out on vacation until July 16th. Wow, we have an entire two weeks to prepare. If you are interested in updates I added a feature to add your email address and get a notification when there is an update to his blog. Although I can not imagine there will be much time for updating, I will "TRY" to update his blog occasionally after surgery.
Tuesday was Wes' endocrinologist evaluation with Dr. Nancy Wright in Tallahassee. She again discussed the diagnosis of Septo Optic Dysplasia and the possibility of hormones deficiencies due to the involvement of his pituitary gland. His past two urines were very diluted, so he will be evaluated once again next week then there is a possibility of a water deprivation test. This will test for diabetes insipidus. NOT diabetes mellitus, or associated to blood sugars. Diabetes insipidus is when the pituitary gland does not release an anti diuretic hormone.
As of now Wes' hormones are all normal, with the possible exception of this anti diuretic hormone. He will need to be evaluated every six months, as it is possible that as he grows his pituitary gland will not be able keep up with his body. His pituitary gland did not develop correctly and there is also a cyst present in that area. His age has made it difficult to fully assess his pituitary gland through MRI’s, so the details we have are inconclusive.
The next two weeks are going to be full, preparing for Wes' surgery and lots of appointments. On an exciting note, Brandon's birthday is July 25th!!!

Nothing beats a good day at the beach (with Cheetos)!!!