We are home! After refreshing infant CPR techniques and learning how to use Wes' monitor, we were finally discharged from the hospital.
We don't have much information on Wes' Meningocele other than the location and that his pituitary gland is involved.
The doctors were only focused on his Obstructive Sleep Apnea, which is caused by his collapsed nostil, deviated septum blocking the open nostril, reflux, drainage, and meningocele causing swelling and pressing on his septum. He has steroid drops and reflux medicine and a device which keeps his mouth open for breathing, which seems to help. Eventually he will grow old enough to begin breathing through his mouth.
We are suppose to follow up with the neurosurgeon and plastic surgeon once they have gotten together and created a plan.
I have copies of his reports and will be sending them to a few neurosurgeons for their opinions. Neurosurgeons that I know have experience with this. Now we just wait and enjoy our boys.