We are heading to Shands in just a few moments. It might be a while before I can post again. Hopefully we will get positive answers. He will be admitted to an ENT and then will have a MRI and be referred to a Neurosurgeon, Dr. Pincus. http://www.neurosurgery.ufl.edu/FacultyPage/pincus.html
As of right now Wes is playing peek-a-boo and in a moment will be transported by ambulance with the Shands transport team. Not the typical patient, which I have always known that Wes is a precious unique little guy.