Wes' Journey

Tuesday, June 17, 2008

We have arrived here in Chicago! Wes is suppose to be at the hospital at 7:30am tomorrow morning.
He is fired up tonight, playing tag with me and Brandon. Love that sweet little voice. He has started saying so much. Really worried that this surgery will be yet another set back in speech. His favorites lately, "I had it first, it is my turn", "Ligthing McQueen", "Hot dog, hot digitty dog", I spy, and tonight, "your it". You can see he is covering his ground with his older brothers on what he needs to say.

2 comments:

Anonymous said...: I am so excited for you and Wes that he has started talking more! Thats awesome..

Hope everything goes well with his surgery today. Will be looking for an update. Prayers are coming your way....; 8:06 AM
Unknown said...: Gina and family,

I'm just checking in to see how everything is going. We sure hope everything is on schedule and going well. We love you and you are in our hearts and prayers.
Love, Aunt Sharron; 6:55 PM

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Our little man

Our amazing little man, Wes, was born March 17, 2006 weighing 7 lbs and 19 1/2 inches long. He has those type of blue eyes that I could get lost in. Weston is such a happy little guy, bringing a smile to some many. He gets his share of looks and stares, not at his scar, instead at the warmth in his big beautiful blue eyes and loving smile that lights up the room. Eveyone who meets him is amazed by his personality. Look at him with a smile and he is going to shine one back at you. When you look at him feeling a little blue, he shines one on you with big hugs and slobby kisses. I look at him and all I see is love. He is my heart,this little guy completes my life and our family. At times I am filled with fear, as my heart aches realizing the pain and unknowns he must face, then I am totally consumed and uplifted by his strength and love. He is cherished by many that have been touched by this little ball of energy. He has away of reaching in and grabbing your heart. He is completely surrounded by love that fills his life!
Wes has faced a difficult journey, yet with love and support of so many he remains such an amazing little guy. He has been diagnosed with cleft lip and palate, basal encephalocele, hypertelorism, nystagmus, septo optic dysplasia, ranthke's cleft cyst, reflux, obstructive sleep apnea, heart murmur...undergone 8 surgeries, 7 MRI’s and 2 ct scan w/spinal taps under full anesthesia, 2 spinal taps, and numerous other procedures and test.