Next week we head back to Chicago for follow up scans. These scans will be the final step for Dr. Bowman to clear Wes for his palate surgery. Hard to believe this surgery was scheduled in Oct 06, he was 8 months old. Finally the month he turns 2 years old, he can have his palate closed.
Past three weeks, Wes has been struggling to breathe again. Nights are again filled with alarms from pulse ox and apnea monitor. His breathing improved with the g-tube feeds. He was able to take some oral feeds in addition to g-tube feeds without any problems. Not the case now. Dr. Curry is concerned the oral feeds are causing the problems. Still having some issues, but one week without any oral feeds, his breathing has improved. For now Wes is being totally g-tube feed. Breaks my heart when he asks for fruit snacks, pop tarts, cheetos, basically anything.
Hate the thought of my baby enduring another surgery and recovery, but I know this step will give him so much with eating and speech. Wes’ g-tube will make his recovery less complicate. The extreme pain from this surgery often cause feeding difficulties. Wes will have his g-tube. Memories of fighting syringes of milk during the last weeks of his latham and recovery of his lip surgery, will not be the case with his g-tube. The challenge with this surgery will be what will come with his breathing difficulties after having this hole closed.
After his palate heals, he his going to have a huge Cheeto party with an Elmo cake to celebrate his second birthday. Forget the little ball pit, Wes needs a huge Cheeto pit!

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