Wes is such a busy little guy. He is all boy! After his surgery and returning home, he is back to full speed. He has dealt with some issues, but has not slowed down. His sleep apnea has come back full strength. Dr. Curry feels the best option at this point for Wes is a g-tube, which will help with food irritating his airway and help Wes gain some much needed weight before his palate surgery. (Here is link with pictures and explanation of g -tubes http://www.rileypediatricsurgery.com/Gastrostomy.htm)
He is scheduled for g-tube for Wed Sept 26th in Chicago. Yes, back to Chicago! Dr. Bowman wants Wes back for scans and where all doctors involved are aware of his neurosurgery and airway issues. His surgery site is actually visible through his palate.
The antibiotics he had post op in the hospital caused an intestinal infection, C-Diff. This has caused horrible diaper rash and put us on alert for side affects. It can also cause this surgery to be postponed. Dr. Bowman has arranged for Wes to have surgery with the head of the pediatric surgery department, Dr. Reynolds. She does require that Wes have a clear culture before proceeding with surgery. Last week this infection appeared to be resolving with Flagyl, but today this does not seem to be the case. Friday the local hospital sent out a culture that will not be back until Monday. Joey and I are suppose to fly out Tuesday. Wes will be in the hospital for a few days following surgery and in Chicago one week post op to learn how to care for and change the g-tube.