Well did you really expect Wes to be simple, plain, or typical?
Wes had his MRI and CT scan yesterday. Due to his breathing issues, he has to have general anesthesia rather than sedation. We were told he would be out in about 1 to 1 1/2 hours. After 2 1/2 hours of hearing a woman hack at the end of the waiting room, I began to get a bit concerned and took a walk down the hall just in time to see Wes going into the CT room. A few minutes later, we watched Wes’ nurse run down the hall with oxygen and then some type of breathing apparatus.
Later when we were called back, Wes seemed to be coming out of anesthesia fine. He did spit up during extubation and required suction and oxygen, but by then he was breathing fine on his own and waking up. He was released about 30 minutes later. Then about a 1 hour later, he had a 105 temp under his arm. Tylenol and back to the ER…a chest X-ray and he was admitted with pneumonia.
Today he does seem to be feeling somewhat better. Last night he just laid there, putting up no fight with the nurses and doctors. Today still lying around but fever down and did give us a little smile. He is just waking up for a TEMP check, after a 4 hour nap.
Positive news came from Dr Bowman, Wes’ bone graft is fitting in nicely to his skull base. In addition to monitoring his surgical repair/bone graft, he will need MRIs to monitor a Rathke’s cleft cyst near his pituitary gland. This also requires regular monitoring by an endocrinologist and ophthalmologist.
We also discussed his palate surgery. The surgeries that are most concerning are the future surgeries dealing with his midface. I honestly feel very torn with the decision of his palate surgery, considering his future surgeries dealing with his midface will need to be here were his anatomy his well known.
At this point regardless, we need to talk with doctors on how soon we can proceed with his palate after his recovery. He is a very popular little guy here! My heart is warmed by everyone’s support and involvement in Wes’ care and most importantly can find comfort that he is in wonderful hands here in the cold windy city.